Thursday, February 28, 2013

Stand by

I am anxiously waiting for a call from Dr. S.  I picked up the CD of images from my HSG yesterday and it had a copy of the written results attached to it.  Once in the car I decided to take a peek, figuring I had a blocked tube at the worst.  It never ceases to amaze me how wrong I can be.

Unicornuate configuration of the uterus with a single, open, left fallopian tube.

In short, I have half a uterus and one tube.  It is a defect where one half of the uterus either doesn't form or only partially forms.  It occurs in about 1 in 4,000 women.  What does this mean for my fertility?  The risk for miscarriage, ectopic pregnancy, and pre term labor are significantly higher.  I will also be labeled a high risk pregnancy and most likely end up with c-section if I get pregnant.  This is due to the fact that the baby tends to run out of room to move and is usually breech.  It is unlikely that I will carry past 36 weeks.

So here I sit, waiting for the phone to ring.  Millions of scenarios are running through my mind, a large percent of them do not end well.  


  1. Having been in your shoes, I know it's a complete shock to find this out. I'll be honest and say that when I first found out I was a hysterical mess. Now, a few months later, I don't think about it quite as much anymore. I'm interested to hear what your RE says, but mine emphasized that it doesn't really impact my ability to get pregnant, and I have the same thing - half uterus with the left tube. I also have both ovaries (as apparently most with this do!). My RE even told me that the lone fallopian tube can even pick up the eggs from the opposite ovary. I don't think it happens like every time, but it CAN happen. Crazy to me! Also, I have done a lot of reading, and for all of the scary stories, there are many good ones, too. I have read of many people who went on to even carry to term. So, I say all of this to say that I know it's really scary and upsetting, but it's maybe not quite as bad as it sounds.

    As a side note, many people that have a unicornuate uterus have only 1 kidney, as well. (I actually do have both of mine.) Anyway, that might be something you want to look into!

    1. Thanks, it's nice to know that someone else is sharing this weird journey. I am pretty sure I have both ovaries, RE didn't say otherwise when going over results of my ultrasounds. I'm trying to stay positive, but the waiting for the call is slowly killing me.

      Very interested to see what my kidney situation is, they can diagnose that via the transvag ultrasounds right? Or did I make that up in my head?

    2. My doctor actually used the regular ultrasound machine on my back to find my kidneys. I am with you though, it's such an unusual thing that having someone else in the same situation makes you feel a little less alone!